Friday 11 January 2019

It's Easy to Forget - By Sharon Flood Kasenberg

Missing Pieces

The sky was dark, the stars were out,
the night was ripe for romance.
She felt him lightly touch her hand
and claim her for the first dance.
One dance led to another one;
One evening led to more -
each began to sense emotions
that they'd never felt before.
One twilight with her hand in his
he got down upon one knee,
and with an earnest, pleading gaze
asked, "Will you please marry me?"
The memory is clear to him
while she recounts the story -
hopes kindled, she asks, "What came next?"
He can't remember - sorry.
Another piece of life has fled,
his peaceful mood upsetting.
She gently smooths his fretful brow
and mourns all he's forgetting.
He's losing pieces of himself -
so much is disappearing -
and someday he'll forget her too;
at least that's what she's fearing.
She grips him tightly by the hand
to keep his feet from straying,
and as she gently guides his steps
her heart continues praying.
She pleads for strength to carry on;
he needs her constant tending.
She knows he'll soon be lost to her -
their days together ending.
The pieces that are lost to him
she clutches desperately -
his charming ways, his witty quips
and his once infectious glee.
His history is filled with holes -
his thoughts scatter to the breeze -
she's grateful he still knows her touch
as he gives her hand a squeeze.
Now he's a puzzle to himself
with pieces time erases;
she tries to catch his straying thoughts
and fit them in their places.

Sharon Flood Kasenberg, April 2006 (For those with Alzheimer's, and those who love and care for them.)

Years ago there was a woman in my congregation at church who faithfully brought her husband to church with her each Sunday. Maybe she hoped that seeing familiar faces and engaging in the religious rituals of a lifetime would trigger fond memories or calm him down, or maybe she simply felt he should not be left at home with a caregiver. Maybe she could not afford a caregiver. I can't address her motivation for bringing him along, but I can tell you that watching the two of them together affected me deeply. The fact that he was completely lost was as evident as the love she felt for him. Sometimes he would get up and wander, and she would patiently bring him back to his seat. Sometimes his agitation would build, and she'd guide him out to the foyer. From afar I watched the emotions play over her face - love, devotion, and heartbreak over what they were both losing.

Once a friend whispered to me, "You should have met him years ago. He was such a charming, intelligent and vibrant man."

Her description of him almost made me weep - they had both lost so much to Alzheimer's.

January is Alzheimer's Awareness month in Canada, and so I thought I would post their story as an illustration of what Alzheimer's looks like and what it robs us of. What could be more painful to a smart and witty person than suddenly forgetting chunks of his or her life? What could be more painful to those they love than watching the destruction of that individual as their memories fade?

My mother-in-law lived in a nursing home for the last seven years of her life. Most of the "serious cases" of Alzheimer's were kept in a locked wing upstairs for their own safety and protection. Those in the early stages were usually admitted to her floor. One particular woman was quite young - only in her late sixties. When she came to the nursing home she was still quite engaged, even though her memory was challenged and her intelligence was only intermittently apparent. Within a year she was moved upstairs, her eyes vacant and her memories gone. I barely knew her, but she and my mother-in-law had struck up a friendship when she was first admitted to care, so she was someone I paid attention to. Alzheimer's was ruthless with her, and her decline was swift and terrible to witness.

I find it interesting that January was the month chosen to draw attention to a disease that makes us forget. The first month in a new year, a time when we're intent on looking ahead to meeting fresh goals and challenges, is the time our attention is drawn to a monster that robs people of the past. Perhaps that's exactly why this month was chosen.

For those of us lucky enough to have capacity to remember, forgetfulness can imbue its own pain in our lives if we aren't vigilant. It's easy to forget a lot of important things. We might forget why we fell in love with the person we're with. We might forget who our friends are. We might forget how much we have to be grateful for, how much we have to offer the world, or how wonderful the world around us really is. As we make resolutions for 2019, let's resolve to try harder to remember those things.

We all lose a little of our sharpness as we begin to age. We misplace our glasses and car keys, and we forget to buy toilet paper until only one bathroom in four has a few sheets on a roll. These are annoying little inconveniences compared to losing the relationships around us because we've grown careless in our efforts to remember; they're irksome trivialities compared to forgetting what used to bring joy into your life.

As we come into 2019 let's resolve to remember what's most important in our lives, and to build on those memories in the future. Let's resolve to find the pieces that are missing from our lives and put them back into their rightful places. We can't control the future, but we can better control what happens in our current lives if we hold firmly to the best pieces of the past. We won't cure Alzheimer's tomorrow, but we can offer comfort to those afflicted and offer assistance to their heartbroken and harried loved ones who bear the burden of all the lost pieces of shattered lives.

It's far too easy to forget - so let's try to remember those who can't, and remember for those who no longer can.

1 comment:

  1. This was a great blog Sharon. My Aunt Frieda, my Dad's sister, had Alzheimer's. I didn't see her a lot at the end. When I did see her, sometimes she was very happy in her own little world and sometimes she was quite agitated. It was very sad.

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